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| FACTS ABOUT HD | ||||||
| About Huntington's Disease | Huntington’s
disease (HD) is a hereditary neurological brain disorder that slowly robs
the affected individual of the ability to walk, talk, think and reason.
HD affects 30,000 Americans and places more than
200,000 “at-risk” for developing the disorder.
In Northern California it is estimated at least 1,000 individuals are
affected with more than an additional 7,000 at risk. Every child of an
affected parent has a 50% chance of inheriting the HD gene, which is located
on chromosome four. Although it usually affects adults between the ages
30 and 45, symptoms can appear in young children and older adults. The
course of illness usually appears in three stages. In the early stages
of the disease, manifestations include subtle changes in coordination,
sometimes minor involuntary movements, difficulty thinking and reasoning,
and often a depressed mood, anxiety or irritability. In the middle stages,
chorea movements may become more prominent. People start having difficulty
swallowing and speaking clearly.Late stage disease is characterized by
immobility and requires major assistance in all activities of daily living.
Currently there is no known cure for HD.
Current treatment is aimed only at controlling the symptoms of the disease.
However, amazing progress is being made in the research fields of genetics
and neurodegenerative disorders. Our scientists tell us that each day
we grow closer to solving the HD puzzle and the future has never been
more promising. With financial support, the Huntington’s
disease Society of America can increase the pace of HD research, fund
more researchers and speed the identification of effective therapies that
will improve the lives of those affected by the disease.
It is important to remember that funding for this disease is actually
funding for all neurological diseases including Alzheimer’s and
Parkinson’s. Because HD is the farthest along
in neurological disease in regards to finding a cure, its research and
successes directly benefit the progression of research in all the neurological
diseases. Research is the only way we will ever find a
cure for HD. |
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| In
loving Memory Sandy Lee before HD |
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| Sandy Lee-mid HD | ||||||
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| Jamie and Courtney | ||||||
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